A few years ago, when my mother-in-law was sinking deeper and deeper into dementia, my husband and I suddenly realized, with some help from professional geriatric counselors, that the devious brain disease had been lurking for some time. Although we had noticed a number of memory issues and behaviors, we continually chalked them up to … Continue reading
Filed under Alzheimer’s …
Gabriel Garcia Marquez and Dementia
Adult children and their parents who are inveterate readers of fiction, especially prize-winning fiction, may want to read two posts at VOXXI (Hispanic Voice of the 21st Century) about Gabriel Garcia Marquez. The two posts are related and inter-connected, examining the tragedy of a great Nobel prize-winning writer who begins to suffer from memory problems, … Continue reading
Alzheimer’s Drug Researcher Becomes a Patient – Loses Job
This short article over at Caring.com reminds us that Alzheimer’s is not just a disease for older and elderly adults. Moreover the story reminds us that our stereotypes and dysfunctional thinking, when it comes to people who are coping with serious diseases, can do much harm.
More on Tracking Devices
Take a few minutes to read, Device Tracks Seniors Prone to Wandering, about tracking devices that use GPS sensors to keep track of people who wander and may get lost. This type of device will be useful for families worried about a loved on with memory loss. Writer Anne Tergesen writes for SmartMoney. The product … Continue reading
Longer Old Age but Lower Quality Near the End?
A few days ago I added a must read link to Michael Wolff’s New York Magazine article, A Life Worth Ending. It’s an eye-opening piece, detailing long drawn-out decline of his mother. Check it out — it really is a must read. For our parents there are no easy end-of-life answers. Those of us with … Continue reading
Dementia Incidence Going Down? We’ll Just Have to Wait and See
Is the incidence of dementia declining? We really want this to be true, because it would mean a lot less suffering for our parents’ generation and in our own. It’s personal and as we age the threat of dementia feels closer and closer. Unfortunately, when we hear news about the incidence of dementia declining we … Continue reading
A Daugher’s Long Goodbye: A Book Review by Mom and Me
When my mom picked up A Daughter’s Long Goodbye: Caring for Mother at the church library, she brought it home and quickly read it cover to cover. Then she suggested that I read it — well actually she instructed me to do so. Caring for Mother, written in 2007, is not easy reading. Virginia Stem … Continue reading
Paul Allen Donates Another $300 Mil to Brain Research
New York Times, March 22, 2012 Paul Allen Gives Millions for Brain Research By Benedict Carey It’s a good day for brain research. Microsoft co-founder, Paul Allen is giving millions more to the Allen Institute for Brain Science, which according to a New York Times article, opened as a center for brain research in 2003.Reporter … Continue reading
Maybe Some Good News About Fighting Alzheimer’s?
Short excerpt from The Fiscal Times, March 14, 2012 A Bold New Attack on the Alzheimer’s Scourge I’ve added a few links to this excerpt. Click on the above link to read the entire article by Michael Hodin, Executive Director of The Global Coalition on Aging. Dr. [Peter] Piot, who served as executive director of the … Continue reading
Dementia Reality Tour
An article in the San Jose Mercury News describes a multi-sensory experience that simulates the perceptions and struggles of a person suffering from dementia. In Santa Clara ‘Dementia Reality Tour’ Shows What It’s Like to Live with the Affliction, Mercury News reporter Helen Shen describes how the simulation asks caregivers to complete routine activities of daily living (ADLs) … Continue reading
Amazing Alzheimer’s Videos Via a Small Hyperlink
When you read a good quality digital article or blog and think you know just about everything that it contains, check the hyperlinks — they may bring you some surprises. In fact, a small discrete hyperlink may open the door to resources that you don’t want to miss. In my case I discovered a set … Continue reading
Another Post on Dementia and The Iron Lady
Karin Kasdin writes on dementia and the Margaret Thatcher movie, The Iron Lady, reflecting and reinforcing some of my thoughts in Dementia, Margaret Thatcher, and What It’s Really Like (January 15, 2012). Moreover, she writes more about privacy issues, includes an insightful quote from Meryl Streep, and deftly identifies the fear that many adult children experience — and I include myself here — when … Continue reading
Dementia, Thatcher’s Privacy, and What It’s Really Like
Last night about 20 minutes into watching The Iron Lady interact with her dead husband, I leaned over to my husband and exclaimed, “Now I really understand what it was like was for your mother — she saw those things.” This movie is about dementia, not history. Lady Thatcher’s conversations with her husband Denis, were … Continue reading
Hospice Helps When a Parent With Dementia is Dying
Sometimes acquaintances describe how a hospice program entered the lives of an aging parent during the last week or even in the last few days of life. My husband and I are aware of just how much hospice offered to our family during the four months before his mother died. However, we have spoken with people — who … Continue reading
Can Cuddly Robots Help People with Dementia?
I’ve just read an article, Robot Brings Dementia Patients Out of their Shells, published in the Chicago Tribune on May 18, 2011, by Joseph Ruzich. He reports that some nursing and rehabilitation centers are “using Paro robots from Japan in therapeutic activities with dementia patients.” The author describes how the robots inspire responses and interactions, stimulating individuals who … Continue reading
Alzheimer’s Disease – Earlier Diagnosis Guidelines
A great summary of the new Alzheimer’s guidelines is at WEB MD. The recently posted article, New Alzheimer’s Guidelines Stress Early Diagnosis by Daniel J. DeNoon, goes over some of the new diagnosis information recently agreed upon by National Institutes of Aging (NIA) and the Alzheimer’s Association expert panels. The complete guidelines were published in the Journal of … Continue reading
Different People – Different Dementias
The Milwaukee Journal Sentinel published a March 14, 2011 article, The Many Faces of Dementia which describes different types of the brain diseases as well as the importance of accurately and carefully diagnosing the type of brain abnormality that is affecting each person. Collecting information for a diagnosis involves not only the physician and patient, … Continue reading
Brain 101 for Seniors and Adult Children
If someone in our families experiences a brain disease — depression, stroke, dementia, Alzheimer’s — the illnesses transport us into the complex world of neurons, plasticity, neurotransmitters, serotonin, hemispheres, and much more. Despite all that is known, the large and complex organ that determines who we are and how we think is a foreign universe. Even the … Continue reading
For the Person Who Remembers: Dementia’s Unbearable Pain
Many of us write about the grief, the burdens, the frustrations, and the unending pain of caring for a spouse or a parent with dementia, but rarely do we read an article that articulately expresses the confusion and torment that accompanies the disease as it incrementally destroys the essence of a beloved partner. In her … Continue reading
Alzheimer’s: Helping a Parent Manage Financial Issues
Interesting article in the November 5, 2010 New York Times describing how adult children can get started helping with finances when a parent has Alzheimer’s. In Stepping in for a Parent With Alzheimer’s reporter Tara Siegel Bernard consults with financial planners, shares their ideas, makes specific suggestions about getting started, and offers tips about how to be … Continue reading